I am still muddling along with my Celiac’s Disease diet. Mostly I’m struggling with not understanding that there’s wheat or another gluten in a prepared product. Today I did research on the topic. I got a mile long list as you’ll see below. I copied and pasted the list here because the site I got it from seems to be viral and I don’t want to have to look there again. It’s a better list than other places I’ve found. I am not ignorant of the first part of the list. I’ve avoided all those easily…it’s the lower list that’s caused me some trouble. I suspected the modified food starch might be wheat based. Now I’m sure and will avoid it…but some of these other ingredients…Holy shit! I’m not sure I can remember all this crap. Makes me think I really just have to not have any more prepared foods unless they specifically say gluten-free on the box, which is a drag because they can be time savers when you are tired or rushed:

Abyssinian Hard (Wheat triticum durum)
Alcohol (Spirits – Specific Types)
Amp-Isostearoyl Hydrolyzed Wheat Protein
Atta Flour
Barley Grass (can contain seeds)
Barley Hordeum vulgare
Barley Malt
Beer (most contain barley or wheat)
Bleached Flour
Bran
bread Flour
Brewer’s Yeast
Brown Flour
Bulgur (Bulgar Wheat/Nuts)
Bulgur Wheat
Cereal Binding
Chilton
Club Wheat (Triticum aestivum subspecies compactum)
Common Wheat (Triticum aestivum)
cookie Crumbs
Cookie Dough
Cookie Dough Pieces
Couscous
Criped Rice
Dinkle (Spelt)
Disodium Wheatgermamido Peg-2 Sulfosuccinate
Durum wheat (Triticum durum)
Edible Coatings
Edible Films
Edible Starch
Einkorn (Triticum monococcum)
Emmer (Triticum dicoccon)
Enriched Bleached Flour
Enriched Bleached Wheat Flour
Enriched Flour
Farina
Farina Graham
Farro
Filler
Flour (normally this is wheat)
Fu (dried wheat gluten)
Germ
Graham Flour
Granary Flour
Groats (barley, wheat)
Hard Wheat
Heeng
Hing
Hordeum Vulgare Extract
Hydrolyzed Wheat Gluten
Hydrolyzed Wheat Protein
Hydrolyzed Wheat Protein Pg-Propyl Silanetriol
Hydrolyzed Wheat Starch
Hydroxypropyltrimonium Hydrolyzed Wheat Protein
Kamut (pasta wheat)
Kecap Manis (Soy Sauce)
Ketjap Manis (Soy Sauce)
Kluski Pasta
Maida (Indian wheat flour)
Malt
Malted Barley Flour
Malted Milk
Malt Extract
Malt Syrup
Malt Flavoring
Malt Vinegar
Macha Wheat (Triticum aestivum)
Matza
Matzah
Matzo
Matzo Semolina
Meringue
Meripro 711
Mir
Nishasta
Oriental Wheat (Triticum turanicum)
Orzo Pasta
Pasta
Pearl Barley
Persian Wheat (Triticum carthlicum)
Perungayam
Poulard Wheat (Triticum turgidum)
Polish Wheat (Triticum polonicum)
Rice Malt (if barley or Koji are used)
Roux
Rusk
Rye
Seitan
Semolina
Semolina Triticum
Shot Wheat (Triticum aestivum)
Small Spelt
Spirits (Specific Types)
Spelt (Triticum spelta)
Sprouted Wheat or Barley
Stearyldimoniumhydroxypropyl Hydrolyzed Wheat Protein
Strong Flour
Suet in Packets
Tabbouleh
Tabouli
Teriyaki Sauce
Timopheevi Wheat (Triticum timopheevii)
Triticale X triticosecale
Triticum Vulgare (Wheat) Flour Lipids
Triticum Vulgare (Wheat) Germ Extract
Triticum Vulgare (Wheat) Germ Oil
Udon (wheat noodles)
Unbleached Flour
Vavilovi Wheat (Triticum aestivum)
Vital Wheat Gluten
Wheat, Abyssinian Hard triticum durum
Wheat amino acids
Wheat Bran Extract
Wheat, Bulgur
Wheat Durum Triticum
Wheat Germ Extract
Wheat Germ Glycerides
Wheat Germ Oil
Wheat Germamidopropyldimonium Hydroxypropyl Hydrolyzed Wheat Protein
Wheat Grass (can contain seeds)
Wheat Nuts
Wheat Protein
Wheat Triticum aestivum
Wheat Triticum Monococcum
Wheat (Triticum Vulgare) Bran Extract
Whole-meal Flour
Wild Einkorn (Triticum boeotictim)
Wild Emmer (Triticum dicoccoides)

The following items may or may not contain gluten depending on where and how they are made, and it is sometimes necessary to check with the manufacturer to find out:

Artificial Color4
baking powder4
Caramel Color1, 3
Caramel Flavoring1, 3
Clarifying Agents4
Coloring4
Dextrins1,7
Dextrimaltose1,7
Dry Roasted Nuts4
Emulsifiers4
enzymes4
Fat Replacer4
Flavoring6
food Starch1, 4
Food Starch Modified1, 4
Glucose Syrup4
Gravy Cubes4
Ground Spices4
HPP4
HVP4
Hydrolyzed Plant Protein4
Hydrolyzed Protein4
Hydrolyzed Vegetable Protein4
Hydrogenated Starch Hydrolysate4
Hydroxypropylated Starch4
Maltose4
Miso4
Mixed Tocopherols4
Modified Food Starch1, 4
Modified Starch1, 4
Natural Flavoring6
Natural Flavors6
Natural Juices4
Non-dairy Creamer4
Pregelatinized Starch4
Protein Hydrolysates4
Seafood Analogs4
Seasonings4
Sirimi4
Smoke Flavoring4
Soba Noodles4
Soy Sauce4
Soy Sauce Solids4
Sphingolipids4
Stabilizers4
Starch1, 4
Stock Cubes4
Suet4
Tocopherols4
Vegetable Broth4
Vegetable Gum4
Vegetable Protein4
Vegetable Starch4
vitamins4
Wheat Starch5

I also found this from the Mayo clinic. It’s not as detailed as this previous list, though I found a notation that I’ll need to talk to my pharmacist about my other medications to make sure they are gluten-free. I’d already taken care of buying the right vitamins. Never thought of the prescriptions though! Boy…there’s a lot to this diet. Once I get it sorted out, I should feel better than I do now. Due to this odd ingredients list, I’ve ended up with exposures several times in the past two weeks. I’m getting it sorted out slow but sure though. I feel better than I did, but I could be feeling better if only I avoided these odd ingredients at the end here. For instance I’d no idea that smoke flavoring might have gluten in it. Wow…no more lox. Now that’s disappointing! And what the hell is maltose and why would Suet be in my foods?! What I struggle with at the moment isn’t symptoms with my belly…though I do have quite a bit of ongoing bloating and have had for years. What’s the struggle is the symptoms of the Vit D anemia. I am depressed. I am not the least unhappy. I’m not having any life issue that could make me feel even remotely unhappy. In fact, my life is full of joy and fun…it’s full of love and sensuality and I want to get up and engage my day…but I am still depressed. It’s the oddest sensation to be intensely happy and depressed at once. It is simply biological. So…I’m waiting it out, but I’m struggling with the effects of the depression.  Anything that causes me to feel the least overwhelmed is where the depression symptoms poke up their heads…and I can’t seem to get myself out of park. It’s horrid.

The other struggle is asthma. It can be quite severe following getting any gluten. It causes dizzyness and disorientation and it causes severe fatigue and I lose my ability to reason or think critically in terms of making an argument for a paper or holding large amounts of information together for writing a paper…and that adds to my overwhelm if that’s what I’m feeling overwhelmed about.

What a pain in the ass!

I have utter faith that once I’ve had no exposures for a while and this anemia is sorted out, I’m going to be glowing with health for the first time in many years. I know it…but I just have to get control of this diet first and wait for the supplements to work their magic…which would happen faster if I got the diet fully under control. Hopefully now I’ll be able to. It didn’t occur to me that gluten can be so hidden in some of these ingredients. If you know anyone with this issue, please pass on this stuff. It will save their health.

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